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Genetic Epidemiology
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141	EUROPLAN National Conferences Template for CONFERENCE FINAL REPORT Writing a clear Final Report is as important as the flawless execution of the National Conference on Rare Diseases. Report writing is an essential elemen Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-04-08 06:32:49 Epidemiology Medical informatics Demography Health economics Rare disease Disease registry Genetic Alliance UK Chronic Rare Disease Day Medicine Health Medical terms
142	Good practice in prescribing and managing medicines and devices: A response from Rare Disease UK About Rare Disease UK It is estimated that 1 in 17 people will be affected by a rare disease1 at some stage in their lives. Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-06-09 05:11:47 Pharmaceutical sciences Pharmacy Epidemiology Rare disease Pharmaceutical drug Association of the British Pharmaceutical Industry Patient safety Pharmaceutical industry Genetic Alliance UK Health Medicine Pharmacology
143	Quality 2020: A 10-year quality strategy for health and social care in Northern Ireland – A response from Rare Disease UK and the Northern Ireland Rare Disease Partnership. About us It is estimated that 1 in 17 people Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2011-08-11 11:30:45 Epidemiology Rare disease Genetic Alliance UK Health care Medical terms Chronic Health equity Health Medicine Primary care
144	Welsh Government Together Against Cancer delivery plan for NHS Wales – a response from Rare Disease UK. About Rare Disease UK Rare Disease UK (RDUK) is the national alliance for people with rare diseases and all who su Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2012-03-06 05:19:03 Genetic Alliance UK Rare disease Prostate cancer Breast cancer Cancer The Bone Cancer Research Trust Medicine Health Epidemiology
145	SAMPLE RARE DISEASE DAY PROCLAMATION Whereas, there are nearly 7,000 diseases and conditions considered rare (each affecting fewer than 200,000 Americans) in the United States, according to the National Institutes Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-04 12:10:20 Rare Disease Day Medicine Disease Knowledge Genetic Alliance UK Non-communicable disease Epidemiology Rare disease Health
146	Rare Disease UK response to the Department of Health and Social Services (Wales) on the consultation on the UK plan for rare diseases About us: Rare Disease UK (RDUK) is the national multi-stakeholder alliance for people Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2012-05-29 09:25:58 Epidemiology Nursing research Rare diseases Genetic Alliance UK Chronic Medical diagnosis Screening National Institutes of Health Clinical trial Medicine Health Medical terms
147	Rare Disease UK response to the Scottish Government Health and Social Care Directorates on the consultation on the UK plan for rare diseases About us: Rare Disease UK (RDUK) is the multi-stakeholder alliance for people w Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2012-05-29 09:15:24 Epidemiology Nursing research Rare diseases Genetic Alliance UK Chronic Medical diagnosis National Institutes of Health Clinical trial Health care Medicine Health Medical terms
148	Ontology term enrichment for metabolite cluster gene modules René Pool1,2,3,4,, Harmen H.M. Draisma1,2,3,, Mohammed El-Kebir5,6,, Jan Bert van Klinken3,7, Ko Willems van Dijk3,7, Cornelia M. van Duijn3,4,8, Christian Add to Reading List Source URL: www.tweelingenregister.org Language: English* - Date: 2014-04-09 10:31:20 Genetics Genomics Human genetics Epidemiology Metabolomics Human genome Genetic epidemiology Genome-wide association study Biology Science Bioinformatics
149	Below you will see a table of the recommendations that Rare Disease UK developed with our members to inform an effective plan for rare diseases. These recommendations were published in our report ‘Improving Lives, Opti Add to Reading List Source URL: www.raredisease.org.uk Language: English - Date: 2012-04-18 12:13:28 National Institutes of Health Epidemiology Hospital Genetic Alliance UK Health Medicine Rare diseases
150	California Department of Public Health California Biobank Community Values Panel The California Biobank Community Values Panel (CBCVP) provides recommendations to the Genetic Disease Screening Program (GDSP) Division’s Add to Reading List Source URL: www.cdph.ca.gov Language: English - Date: 2014-12-31 11:15:21 Epidemiology Biobank California Department of Public Health Newborn screening Biological databases Science Health

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